{"id":7703,"date":"2023-03-27T10:59:52","date_gmt":"2023-03-27T07:59:52","guid":{"rendered":"https:\/\/urbancare.clinic\/what-is-fowlers-syndrome-rare-condition-leaves-woman-unable-to-normally-urinate\/"},"modified":"2023-03-27T10:59:52","modified_gmt":"2023-03-27T07:59:52","slug":"quest-ce-que-le-syndrome-de-fowlers-une-maladie-rare-qui-empeche-la-femme-duriner-normalement","status":"publish","type":"post","link":"https:\/\/urbancare.clinic\/fr\/quest-ce-que-le-syndrome-de-fowlers-une-maladie-rare-qui-empeche-la-femme-duriner-normalement\/","title":{"rendered":"Qu'est-ce que le syndrome de Fowler ? Une maladie rare emp\u00eache une femme d'uriner normalement"},"content":{"rendered":"
<\/div>\n

Une femme de 30 ans au Royaume-Uni, incapable d'uriner normalement pendant plus d'un an, a r\u00e9v\u00e9l\u00e9 son calvaire sur les r\u00e9seaux sociaux, affirmant qu'il lui avait fallu 14 mois pour obtenir un diagnostic de sa maladie rare.<\/p>\n

La condition qui a affect\u00e9 Elle Adams de l'est de Londres l'a emp\u00each\u00e9e de faire pipi m\u00eame si elle a bu beaucoup de liquides et ressenti l'envie d'uriner.<\/p>\n

"J'\u00e9tais en tr\u00e8s bonne sant\u00e9. Je n'ai eu aucun autre probl\u00e8me. Je me suis r\u00e9veill\u00e9 un jour et je n'\u00e9tais pas capable de faire pipi \u00bb, Adams a dit<\/a> sur sa page. \u00ab J'\u00e9tais tr\u00e8s inquiet. J'\u00e9tais \u00e0 un point de rupture - ma vie avait compl\u00e8tement chang\u00e9. Je n'\u00e9tais pas capable d'accomplir une t\u00e2che aussi simple que d'aller aux toilettes \u00bb, a-t-elle ajout\u00e9.<\/p>\n

Bien que les m\u00e9decins n'aient pas pu initialement diagnostiquer son \u00e9tat, pr\u00e8s de 14 mois plus tard, on lui a dit qu'elle \u00e9tait atteinte du syndrome de Fowler. Les m\u00e9decins l'ont \u00e9galement avertie que cette maladie rare pourrait l'obliger \u00e0 utiliser un cath\u00e9ter pour le reste de sa vie.<\/p>\n

"Je suis l'une des milliers de femmes dont la vie a \u00e9t\u00e9 d\u00e9chir\u00e9e par le syndrome de Fowlers", a d\u00e9clar\u00e9 Adams, ajoutant que de nombreuses personnes ignorent encore la maladie.<\/p>\n

Qu'est-ce que le syndrome de Fowler ?<\/strong><\/p>\n

Syndrome de Fowler affecte<\/a> jeunes femmes entre 20 et 30 ans. La condition se pr\u00e9sente g\u00e9n\u00e9ralement sans autres sympt\u00f4mes que l'incapacit\u00e9 de vider la vessie. Cependant, certaines femmes peuvent ressentir des maux de dos, des douleurs sus-pubiennes et des malaises dus \u00e0 des infections urinaires.<\/p>\n

Elle est caus\u00e9e lorsque le sphincter ur\u00e9tral externe ne se d\u00e9tend pas, ce qui permet \u00e0 l'urine de passer normalement.<\/p>\n

Le sphincter ur\u00e9tral est une structure musculaire qui r\u00e9glemente<\/a> l'\u00e9coulement de l'urine de la vessie vers l'ur\u00e8tre. Alors que le sphincter ur\u00e9tral interne contr\u00f4le le flux d'urine involontaire de la vessie vers l'ur\u00e8tre, le sphincter ur\u00e9tral externe r\u00e9gule le contr\u00f4le volontaire de l'urine de la vessie vers l'ur\u00e8tre.<\/p>\n

Le rare<\/a> l'\u00e9tat est estim\u00e9<\/a> \u00eatre pr\u00e9sent dans 0,2 cas sur 100 000 personnes par an.<\/p>\n

Bien que la cause exacte de l'insuffisance sphinct\u00e9rienne soit inconnue, elle est g\u00e9n\u00e9ralement observ\u00e9e chez les femmes spontan\u00e9ment ou apr\u00e8s une intervention chirurgicale, un accouchement, la consommation d'opiac\u00e9s ou d'autres conditions m\u00e9dicales.<\/p>\n

La gravit\u00e9 de la maladie varie chez chaque patient. Certains patients peuvent \u00eatre capables d'uriner avec difficult\u00e9, tout en conservant des quantit\u00e9s importantes, tandis que d'autres souffrent d'une r\u00e9tention compl\u00e8te. Ceux qui n'ont pas une r\u00e9tention compl\u00e8te peuvent remarquer des infections r\u00e9currentes de la vessie ou m\u00eame des infections r\u00e9nales.<\/p>\n

Quelles sont les options de traitement?<\/strong><\/p>\n

Les options de traitement sont bas\u00e9es sur la gravit\u00e9 de l'\u00e9tat et le volume r\u00e9siduel d'urine laiss\u00e9 apr\u00e8s la miction. Aucune intervention n'est n\u00e9cessaire pour les patients qui ont de tr\u00e8s faibles niveaux de volumes r\u00e9siduels, tandis que ceux qui ont des volumes r\u00e9siduels \u00e9lev\u00e9s ont besoin d'un cath\u00e9t\u00e9risme intermittent r\u00e9gulier.<\/p>\n

Dans les cas graves, les patients qui ont une r\u00e9tention compl\u00e8te peuvent avoir besoin d'une stimulation du nerf sacr\u00e9 (SNS) th\u00e9rapie<\/a>, qui consiste \u00e0 fournir des impulsions \u00e9lectriques douces \u00e0 travers une sonde plac\u00e9e pr\u00e8s du nerf sacr\u00e9.<\/p>\n

\u00ab Cela ne change pas la vie, mais cela peut aider. Je sonde beaucoup moins, environ 50% de moins. Cela m'a facilit\u00e9 la vie, apr\u00e8s deux ans d'enfer, c'est tout ce que je peux demander \u00bb, a d\u00e9clar\u00e9 Adams, qui a suivi la th\u00e9rapie en janvier 2023.<\/p>\n

Publi\u00e9 par Medicaldaily.com<\/p>\n

Source quotidienne m\u00e9dicale<\/a><\/p>\n

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La maladie rare qui a touch\u00e9 Elle Adams, originaire de l'est de Londres, l'a emp\u00each\u00e9e de faire pipi, m\u00eame si elle buvait beaucoup de liquides et ressentait le besoin d'uriner.<\/p>","protected":false},"author":2,"featured_media":7704,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"Default","format":"standard","meta":{"fifu_image_url":"https:\/\/urbancare.clinic\/wp-content\/uploads\/2023\/03\/what-is-fowlers-syndrome-rare-condition-leaves-woman-unable-to-normally-urinate.jpg","fifu_image_alt":"","footnotes":""},"categories":[27],"tags":[],"class_list":["post-7703","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"yoast_head":"\nWhat Is Fowler's Syndrome? 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